© 2004 by Oxford University Press
2004 © Oxford University Press
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Cancer Outcomes Research
Division of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, MD. (JL, MSD, NKA, MLB, SBC, ALP, BBR, JHR, CFS, SHT).
Correspondence to: Joseph Lipscomb, PhD, Department of Health Policy and Management, Rollins School of Public Health, Emory University, 1518 Clifton Rd., NE, Rm. 642, Atlanta, GA 30322 (e-mail: jlipsco@sph.emory.edu).
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INTRODUCTION |
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If the central business of cancer outcomes research is the pursuit of information relevant to a range of decision makers (1), i.e., patients, families, providers, payers, regulators, standards setters, and researchers, several questions quickly arise. What is the nature and scientific quality of the information currently being produced? How do we enhance the rigor and relevance of cancer outcomes research, with a concern not only for the methodological and empirical foundations but also its potential and actual contributions to decision making? What is the research agenda to carry us forward?
The preceding 10 papers of this Monograph sought to address the first
question above—the quality of the information—through empirically
grounded reviews and evaluations of the published literature. This final
paper, authored by staff at the National Cancer Institute (NCI), examines
aspects of the remaining questions. It identifies the elements of a research
agenda intended to generate better scientific
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MACRO-LEVEL: APPROACHES TO EXPANDING THE RANGE OF CANCER-RELATED OUTCOMES IN POPULATION SURVEILLANCE |
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HRQOL |
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Satisfaction With Care
Economic Burden
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MESO-LEVEL: ENHANCING THE INFORMATION BASE FOR DECISION MAKING ACROSS THE CANCER CONTINUUM |
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Efficacy
Effectiveness
Cancer Impact—Focusing on Survivorship
Monitoring Patterns of Care and the Quality of Care
Clinical Modeling, Economic Evaluation, and Priority Setting
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MICRO-LEVEL: INVESTIGATING THE ROUTINE USE OF PATIENT-REPORTED OUTCOMES IN CLINICAL ONCOLOGY PRACTICE |
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Challenges
Opportunities
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IMPROVING THE DATA AND METHODS FOR CANCER OUTCOMES RESEARCH |
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Potential Contributions of Modern Psychometrics
Developing a Cancer Information and Surveillance System To Monitor, Assess, and Improve the Outcomes of Care Across the Continuum
Ascending the Outcomes Research Pyramid: An Illustration
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A NEW FRONTIER: UNDERSTANDING AND IMPROVING THE PROCESSES AND OUTCOMES OF CANCER CARE DECISION MAKING |
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Clinical Policy Formation
Regulation and Standards Setting Coverage and Reimbursement Decisions by Third Parties
Purchasing, Benefits Package Design, and Care Delivery Decisions by Providers
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