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JNCI Monographs 2005 2005(35):102-105; doi:10.1093/jncimonographs/lgi046
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© The Author 2005. Published by Oxford University Press. All rights reserved. For Permissions, please e-mail: journals.permissions@oxfordjournals.org.

Brief Report

Participation of Asian-American Women in Cancer Treatment Research: A Pilot Study

Tung T. Nguyen, Carol P. Somkin, Yifei Ma, Lei-Chun Fung, Thoa Nguyen

Affiliations of authors: Vietnamese Community Health Promotion Project, Division of General Internal Medicine, Department of Medicine, University of California, San Francisco, CA (TTN, TN); Kaiser Permanente Northern California, Division of Research, Oakland, CA (CPS); Department of Adolescent Medicine, University of California, San Francisco, CA (YM); Chinatown Public Health Center, San Francisco Department of Public Health, San Francisco, CA (L-CF)

Correspondence to: Tung T. Nguyen, MD, Box 0320, University of California, San Francisco, San Francisco, CA 94143 (e-mail: tung{at}itsa.ucsf.edu).

Few Asian-American women participate in cancer treatment trials. In a pilot study to assess barriers to participation, we mailed surveys to 132 oncologists and interviewed 19 Asian-American women with cancer from Northern California. Forty-four oncologists responded. They reported as barriers language problems, lack of culturally relevant cancer information, and complex protocols. Most stated that they informed Asian-American women about treatment trials. Only four women interviewed knew about trials. Other patient-identified barriers were fear of side effects, language problems, competing needs, and fear of experimentation. Family decision making was a barrier for both oncologists and patients. Compared to non-Asian oncologists, more Asian oncologists have referred Asian-American women to industry trials and identified barriers similar to patients' reports. Our findings indicate that Asian-American women need to be informed about cancer treatment trials, linguistic barriers should be addressed, and future research should evaluate cultural barriers such as family decision making.


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